Article previously published in the Cutaneous Lymphoma Foundation's Forum Fall 2012 newsletter.
Questions to ask your healthcare professional after diagnosis:
1. What stage is my CTCL?
2. What treatment is appropriate for my stage of CTCL?
3. Should I get a second opinion?
4. Where can I get treatment? Is there a location near my home?
5. How many cases of cutaneous lymphoma do you see a year?
6. How advanced is my stage of disease?
7. Why are you recommending this particular treatment?
8. Are there other treatment options available for cutaneous lymphoma and what are the pros and cons of each?
9. Is there any written material about the recommended treatment that we can take home to read?
10. What are the goals of this treatment?
11. How long will the treatment last?
12. What are the risks of this treatment?
13. What are the side effects of this treatment?
14. Are there ways to manage the side effects?
15. How do we know if a side effect is severe enough to warrant calling you?
16. What do we need to do to prepare for this treatment?
17. Is there anything that’s important to avoid before or during treatment?
18. Can you tell us what to expect during treatment -- where does it take place, how long does it last, and is it uncomfortable?
19. How do patients typically feel after treatment, both immediately afterward and in the days that follow?
20. Is it a good idea to make certain diet or lifestyle changes, and how can friends and family help with these?
21. Are there any new treatment options or clinical trials we should be aware of?
22. What’s the best way for us to contact you when we have more questions about the treatment?