Facing the challenges
Cutaneous T-cell lymphoma (CTCL) is a disease that can change the way you look. With CTCL, you can have dry patches, red skin, plaques, skin ulcers, and tumors. You can also have severe itching and discomfort. All of this can affect how you feel about yourself. You may find that you have lost interest in being with others, which can make you feel alone and depressed. CTCL can also affect your life in other physical, practical, and emotional ways.
You may have difficulty:
Physical discomfort and fatigue may cause you to have difficulty with certain activities, such as:
You may feel:
Talking with others can help
You may wonder how you can live — and enjoy life — with CTCL. You are not alone. Others have felt the same way. And they have found ways to manage the challenges and start enjoying life again. Talking about these concerns and feelings with a family member, friend, or someone on your healthcare team can help you find solutions and support.