Cutaneous T-cell lymphoma (CTCL) will present you with challenges. But, try to remember that you do not have to cope with your illness alone. By reaching out to others for information and the support you need, you are taking care of your whole self — a key to coping with your CTCL.
Your CTCL support team might include:
Your doctor and healthcare team
Family and friends
A CTCL support group
Others with CTCL
The Cutaneous Lymphoma Foundation and related organizations
People in your spiritual community
It may not be easy for you to ask for help or to even know what kind of help you need. You may need different types of support at various times during your illness. Luckily, help and support come in many different forms. Today you may need someone to listen to your concerns or offer you guidance. Another day you might need practical help — someone to drive you to treatment or run an errand. Family members or friends often want to help. When you reach out to them for support, everyone may benefit.
Talking with other people who have CTCL also can be helpful. They have walked in your shoes and really understand what you are going through. That is one reason why support groups can be so useful. In a CTCL support group, people share experiences and information and offer each other tips on coping. The Cutaneous Lymphoma Foundation can provide you with information on how to find a CTCL group. You may find it helpful to talk about your most difficult thoughts and feelings with someone who has experience counseling people with cancer, such as a psychologist or an oncology social worker. You also may want to reach out to a member of your faith or spiritual community. Remember, you do not have to face this disease alone.