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Answers from the Experts: Sun Exposure (Video)

Cutaneous lymphoma experts provide answers to the question: "Should I be exposing myself to the sun?"

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Answers From the Experts: Vaccinations (Video)

Cutaneous lymphoma experts provide answers to the question: "Should I get vaccinations?"

Living With a Diagnosis of Cutaneous Lymphoma

You have cancer. Those three words can unleash a riptide of emotions, from disbelief to anger to sadness to fear. All those emotions and more are normal and can be allayed by asking questions, gaining information, and talking with individuals who have either experienced the disease or understand its normal course of action.

Sharing Your Diagnosis With Family and Friends

Sharing your diagnosis with others can be difficult. Cutaneous lymphoma is not like other cancers. It is a chronic, live-a-long-time-with-it disease and most people understand cancer to be dire and often deadly.

Empower Yourself With Comprehensive Medical Documentation

Empower Yourself With Comprehensive Medical Documentation

Empowered patients are those who become active members of their healthcare team. Obtaining and keeping copies of your medical records including images (X-rays, scans, CT, MRI) and lab results is good advice for any person receiving medical attention.

Workplace and Cancer

Workplace and Cancer

Can I return to work? People living with cancer frequently ask this question. Work is an important part of our lives. It provides income, health insurance, social network of support, sense of normalcy, meaning, purpose and recognition. It is very important for you to know the legal protections that exist when you have cancer and are working or are re-entering the workforce.

The Impact of Skin Changes

You may wonder how you can live — and enjoy life — with CTCL. You are not alone.

Hair Loss and Cutaneous T-Cell Lymphoma

Cutaneous T-cell Lymphoma (CTCL) is a cancer of lymphocytes (white blood cells) that initially affect the skin. CTCL is associated with many symptoms including itching, redness of the skin, scaliness, and many others. Sometimes patients with CTCL may notice a loss of hair, or alopecia, which can affect any area of the body.

Sexuality

Being intimate can be challenging when you have cutaneous lymphoma.

How to Live a Life of Joy

How to Live a Life of Joy

If you have a chronic or rare disease, it's an even greater challenge to "live your best life." That's why we need to do all we can as patients to empower ourselves and ensure that we have the best care possible.

Reach Out and Touch Someone: Why Affection Is Good For You

Reach Out and Touch Someone: Why Affection Is Good For You

You’ve no doubt noticed that during times of stress, many of us have a natural tendency to reach out to others for support. When you’re diagnosed with cancer—or when you’re just having a discouraging day—communicating with a loved one feels like the right move. And in fact, a great deal of science suggests that it is.

Finding Support

Finding Support

By reaching out to others for information and the support you need, you are taking care of your whole self — a key to coping with your CTCL.