Cutaneous lymphoma experts provide answers to the question: "Should I be exposing myself to the sun?"
Cutaneous lymphoma experts provide answers to the question: "Should I get vaccinations?"
This…is…your…life. You have the right, indeed the obligation to yourself and to those who love you, when speaking to your doctor, to ask any questions you have, to get clarity about anything that has been said and to feel free to keep the conversation open until you are satisfied that in the days to come you can ask about any aspect of your treatment.
A question that often arises when newly diagnosed patients call the Cutaneous Lymphoma Foundation is: “What and how should I tell my friends and family?” There is no One-Size-Fits-All answer to this. Social worker, Leora Lowenthal offers some guidelines that allow each reader to come up with their own best solution.
Social worker Leora Lowenthal shares practical recommendations on how to live fully with cutaneous lymphoma.
Being diagnosed with cutaneous lymphoma while living far from a specialist may present innumerable challenges. However, there are some strategies for patients to utilize that may be employed to effectively handle these situations:
You have cancer. Those three words can unleash a riptide of emotions, from disbelief to anger to sadness to fear. All those emotions and more are normal and can be allayed by asking questions, gaining information, and talking with individuals who have either experienced the disease or understand its normal course of action.
Sharing your diagnosis with others can be difficult. Cutaneous lymphoma is not like other cancers. It is a chronic, live-a-long-time-with-it disease and most people understand cancer to be dire and often deadly.
Empowered patients are those who become active members of their healthcare team. Obtaining and keeping copies of your medical records including images (X-rays, scans, CT, MRI) and lab results is good advice for any person receiving medical attention.
Can I return to work? People living with cancer frequently ask this question. Work is an important part of our lives. It provides income, health insurance, social network of support, sense of normalcy, meaning, purpose and recognition. It is very important for you to know the legal protections that exist when you have cancer and are working or are re-entering the workforce.
You may wonder how you can live — and enjoy life — with CTCL. You are not alone.
Cutaneous T-cell Lymphoma (CTCL) is a cancer of lymphocytes (white blood cells) that initially affect the skin. CTCL is associated with many symptoms including itching, redness of the skin, scaliness, and many others. Sometimes patients with CTCL may notice a loss of hair, or alopecia, which can affect any area of the body.
If you have a chronic or rare disease, it's an even greater challenge to "live your best life." That's why we need to do all we can as patients to empower ourselves and ensure that we have the best care possible.
You’ve no doubt noticed that during times of stress, many of us have a natural tendency to reach out to others for support. When you’re diagnosed with cancer—or when you’re just having a discouraging day—communicating with a loved one feels like the right move. And in fact, a great deal of science suggests that it is.
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